I needed a clear way to know
what Lilli wanted or needed, without the ipad. Just a simple “Yes” or “No.”
Shopping trips have always
been difficult, even typing with an ipad. This is one of the best, solid
communication methods I have ever found with Lilli. Why did it take so many years
for me to think this up?
Here it is, nothing fancy: The Yes No Velcro cards - in a purple purse.
Lilli’s Little Purple Plastic Purse. We love that book. |
The purse part is important.
Lilli is eight, and fashion is important to an eight year old. It makes her
feel like a big girl, and encourages more independence. Plus, it’s cute. (And
it was only a dollar at a yard sale.)
She can’t carry the purse
herself yet, but maybe one day she will. We could get a bigger strap and put it
on her shoulder. For now we just carry it for her and leave it in her sight.
When we want to ask Lilli a question, we pull the cards out for her.
The Problem with Other Yes and No Methods:
Pointing - We tried having her point at the words Yes and No. But
lots of people with autism have trouble with pointing. Lilli has worked on
pointing at things she touches for
years. It is still hard for her. She never, ever points at something in the air
or someone across the room. Touch is important. It works in specific situations:
if I hold out two objects and say “which one do you want?” she can touch or
grab the object. But she rarely point-touches, it is usually more of a whole
hand tap or grab. And it does not work for everything. Pointing is not always accurate either. She
can aim to point at something and go off to the side. Or in the middle between
two pictures, for example. All of this
is confusing to me about Lilli, because she can do some things like
Starfall.com on a touchscreen. But she needs guidance with typing. I do not
know why there is a discrepancy, I just know that she finds it easier to reach
out and grab something as opposed to touching it with her pointer finger.
Vision can also be a problem.
We are still unsure of Lilli’s exact vision issues. She uses peripheral vision
often. Side glances are more prominent than direct eye contact. If we put two
pictures next to each other but space them far apart for easier aim in pointing/touching,
we can’t tell if both cards are within her field of vision.
Signing - We have been
working on signing “yes” and “no” for years, but it is not consistent. Most
importantly, Lilli has trouble signing with people she does not know, and
signing in situations where there is pressure or she is overstimulated. For
example, at the mall with music playing and lots of people around.
Nodding - Lilli cannot nod her head yes or shake her head no,
to answer a question. She is physically able to move her head, but not on
command. It’s an autism thing.
These are all methods that we
take for granted every day. How many ways can you express “Yes” or “No” to
others? We have many choices, but Lilli has very few. Lilli had done well with
Velcro pictures in the past, and now we know that she can read. So the YES NO Velcro
cards were born. Simple, clear, and concise. I ask her the question, and hold
out the cards. She pulls off the “Yes” or the “No,” and hands it to me. I LOVE Velcro. (so does Lilli.)
This simple method has been
very helpful and accurate. And it WORKS for us. I hope this idea will help
someone else who has a similar issue.
These are our rules:
1. Always put YES on the left. At one point, we were switching the cards around each
time, to make sure she was looking at them before she answered. Sometimes YES
would be on the left, and sometimes it would be on the right. This came from
the idea that we needed to “test” Lilli and make SURE she was paying attention
to the cards. Then I realized, this is
not fair. When you ask someone a question with a yes or no answer, do you
say, “Do you want a slice of pie? No or
yes?” Most people would say, “Yes or
no?” Yes always comes first. Another reason: we all do things with muscle
memory. When we type, we don’t look at the keyboard all the time (if we know
how to type, that is.) Our fingers just know where to go. The letters are not “switched
on us.” When we drive, (if we are experienced drivers) we don’t look down at
our hands and concentrate on every move they make. Some people can text without
looking. I cannot do this, but I have an old flip phone and I am old fashioned.
(Or just old.) So when Lilli does things, she sometimes uses muscle memory too.
She reaches for the one on the left, or the one on the right. So they always have
to be the same. Make sense?
2. Do not use the YES NO cards to test Lilli with
silly, test-like questions that insult her intelligence. She is smart! If we ask her something stupid like, “Are
you a girl?” trying to see if she understands, she will get mad and either not
answer, or take both cards off and throw them on the floor. We only use the YES
NO cards to ask her conversational, everyday questions that we do NOT know the
answer to. Otherwise, we would not ask her, silly! So for example, I ask her “Do
you want mustard on your sandwich?” “Do you have to use the bathroom?” This helps me to know what she wants, and it
helps me to include her. I enjoy being able to ask her something like, “Do you
like this song?” Or, “Do you like this bracelet?” These little questions help
connect one person to another.
3. Use the cards all the time, about everything. Lilli wants to have a “say” in the choices in her
life. We took the purse with her to church, and the volunteers taught her a
Sunday school lesson and asked her questions. We took the purse to occupational
therapy, and the therapist used the cards to ask her if she wanted to go on the
swing during therapy. I use the cards to
ask her about food choices, play choices, bathroom, fashion, books we are
reading, and her opinions on things. Lilli has shown us over and over that she
completely understands, and she has her own opinions and preferences. We are beginning to use the cards when
shopping, and it has proven to be the clearest, easiest way to know what she
wants and does not want. Is it 100% accurate? I guess I have no way of proving
it. But today when I asked Lilli if she wanted tomatoes on her sandwich, she
told me yes. So she got tomatoes. Almost
every time I have asked her if she had to go to the bathroom and she used the
cards to say “Yes,” I have taken her and she DID go. Answering yes or no often has
direct immediate consequences. I think it is a super skill to work on with a
child who has no “voice.” So even if it is not 100% all the time, it is easy, fast,
and better than anything else we’ve got going on here.
We also put the potty button
into the purple purse. The portable potty button is concealed in a zipper
change purse. I sewed a ribbon onto it so she can wear it, but since we got the
purple purse she does not wear the potty button. We put the purple purse where
she can see it, and she has gone over to it and pushed on the purse with the
potty button inside. In case you missed my post about the potty button, it is a rigged recordable picture frame that says "I have to go potty" when pushed.
So now we have a purse for a non-verbal, fashionable girl with
the ability to communicate “Yes,” “No,” and “potty.”
My niece sent the change purse that I used for the potty button camouflage. I used a ribbon I
already had and sewed on a strap. The card for the back of the YES NO cards is cut
out of a piece of a plastic school folder that I picked up at Office Max. I
printed out the words “Yes” and “No” at home and had them laminated, but they
can be mounted on cereal box cardboard and covered with clear packing tape – we
do that a lot to avoid a trip to the office store. So it was very inexpensive.
So simple, cheap, yet so
valuable. If you know someone who is non-verbal, will you
please share this idea? I can’t keep this to myself. I know there are other non-verbal
children or even adults out there who might be able to use this simple method.
So what do you think? Do you like this idea? Yes…or No?
YES!!! I love it!! This is so great, so creative.
ReplyDeleteYou could attach the yes and no to button like the potty button and then she could "say" yes and no. Press or just accident squeeze as she pulls off. wrap and elastic gently around the button to keep it from opening.
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